EKANGALA, South Africa ,—Jan 27, 2019— Buhle Mathebule, 4 years old, squints against the harsh sunlight outside her family’s one-room shack in Ekangala, South Africa. She is spending rare time with her sister, 11-year-old Perlucia, who is home for the holidays.
Buhle was born with albinism. Perlucia was badly burned as a baby. Both children are the source of much worry for their parents, who support the family and its delicate medical needs with part-time construction work.